A Paradox Lifestyle: Living With Myositis and Dating

A Paradox Lifestyle: Living With Myositis and Dating

A Paradox Lifestyle: Living With Myositis and Dating

Living with myositis means my life feels like a paradox—impossible yet simple, full of discipline yet uncertain. Dating adds another layer: how do you explain a life turned upside down, but still full of dreams, goals, and hope?

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3 min read

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September 13, 2025

Sep 13, 2025

An honest reflection on living with myositis and the challenges of dating while navigating health, goals, and hope for the future.

Working hard on my health, my goals, and my happiness—one day at a time.

An honest reflection on living with myositis and the challenges of dating while navigating health, goals, and hope for the future.

Working hard on my health, my goals, and my happiness—one day at a time.

My lifestyle for many years has been unique, to say the least. Honestly, it’s both ridiculously impossible and strangely simple.

It feels like a paradox.

But what is a paradox, really? Google tells me:
“A statement that seems to contradict itself but may nonetheless be true. Example: the paradox that standing is more tiring than walking.”

Yeah—that’s my life. It’s literally harder for me to stand still than it is to walk.

The Question

This morning I woke up from a strange dream. I was on a first date, she asked me a question, and I jolted awake.

The question: “What do you do for work?”

LOL. That’s a great question. What do I do for work? Do you mean what I used to do? Because life has sure changed.

I used to have a career. I used to own my own company.
What happened? Myositis, of course.

And beyond that—there’s always the possibility of me getting sick again. Deathly sick. That’s a reality I can’t ignore.

These are the kinds of thoughts that keep me up at night.

Do I really want to date?
Do I want to burden someone with this madness?
Will they derail my journey—or will I derail theirs?

What’s Needed for a Relationship?

I thought about what’s truly required to make a relationship successful. My list:

  • Attraction

  • Compatibility

  • Dreams

  • Goals

  • Fun

  • And… Safety

That last one is tough. How can I provide safety to someone else when I can barely protect myself?

The Answer

This is why I don’t date right now. How do I explain my life without sounding like a mess? I know everyone has problems, but mine feel heavier.

I’m scared. Petrified sometimes. Scared of the future.
Will it be good? Great? Or will I end up housebound and miserable?

I also worry that a new partner could send me spiraling into depression or anxiety. It wouldn’t take much—most days I’m hanging on by a thread.

Yet… I also know this: I work harder than most people I know. Just not on the same things they do. And I do stay positive, hopeful, and motivated.

Still, how do I explain all of this without them running for the hills?

A Glimpse Into My World

I imagine the conversation might go something like this:

Q: “What are your dreams?”
A: To live my best life and to have fun—so much fun—no matter what happens.

Q: “What are your goals?”
A: To inspire others and to be in the best shape of my life, physically and mentally.

Q: “What do you do every day?”
A: First, I take care of my health. Meditation, stretching, a workout, and good meals. That’s three hours every morning, non-negotiable.

Then, I focus on what I call See Stu Go. Two parts:

  1. Living my best life—going, going, going—laughing, shining, and soaking in each moment.

  2. Inspiring others by showing that no matter your circumstances, you can still live your best life.

After that, I figure out work. Some days it’s Uber, handyman jobs, or Amazon Flex. Other days? Billy texts me to play golf—and I say yes. Or I skip work to go hiking.

Because money has to take a back seat.

I write a lot. Journals, blog posts, chapters of my book. Some days I dive deep into my website or projects. Some days I don’t. But I always try to align with my goals.

The Truth

So how does someone fit into all this? I’m not sure. It might not sound like there’s time for a relationship.

But here’s the thing—I still want one.

Even with the chaos, even with the fear, I know there’s someone out there. I want to make time for her. I just don’t know how yet.

So for now, I’ll stay alone. Content. Working on me.

But not giving up hope.

About the Author

Fixing homes, crawlspaces, and sometimes myself.

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Come Along
for the Journey.🎈

Subscribe to See Stu Go and get personal stories, health tips, and inspiration from my own path of resilience. Let’s navigate life’s twists and turns—together.

Come Along
for the Journey.🎈

Subscribe to See Stu Go and get personal stories, health tips, and inspiration from my own path of resilience. Let’s navigate life’s twists and turns—together.

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