Blowing Out Candles, Shining a Light

Blowing Out Candles, Shining a Light

Blowing Out Candles, Shining a Light

On my 55th birthday, I’m not just celebrating life—I’m shining a light on World Myositis Day. Awareness matters, because someone out there could use a little hope.

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1 min read

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September 18, 2025

Sep 18, 2025

September 21st is both my 55th birthday and World Myositis Day—a rare disease awareness day that deserves a spotlight. Join me in spreading hope and inspiration.

Stu is driving his way towards hope...

September 21st is both my 55th birthday and World Myositis Day—a rare disease awareness day that deserves a spotlight. Join me in spreading hope and inspiration.

Stu is driving his way towards hope...

This Sunday, I’ll Blow Out Candles—But More Importantly, I’ll Shine a Light

Yes, Sunday is my birthday—September 21st. I’ll be fifty-five. 😁
These days I don’t feel my age, but not so long ago I did. Back then, I felt my age and then some.

More importantly, this Sunday is World Myositis Day 🎈—a day to give a voice to a rare disease most people have never heard of.

I’ve lived with Myositis since 2015, when I was first diagnosed with Necrotizing Myopathy. It’s been a crazy road—plenty of highs and lows, and honestly, sometimes more lows than highs.

But today, life feels like it’s finally moving downhill in the best way. I’m grateful, and I’m grabbing happiness every chance I get. I’m trying to inspire people that anything is possible—and, maybe most importantly, I’m trying to inspire myself.

Everyone needs inspiration. And when you live with a rare disease, it’s even more important.

So this Sunday, please help me spread the word. Share this post and share my website, SeeStuGo.com.

Your kindness is needed more than you could possibly know. There’s someone out there right now who could use a little hope.
And maybe, if we work together, we can be their flashlight.

About the Author

Fixing homes, crawlspaces, and sometimes myself.

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Stu in the River near Gatlinburg TN

Come Along
for the Journey.🎈

Subscribe to See Stu Go and get personal stories, health tips, and inspiration from my own path of resilience. Let’s navigate life’s twists and turns—together.

Stu in the River near Gatlinburg TN

Come Along
for the Journey.🎈

Subscribe to See Stu Go and get personal stories, health tips, and inspiration from my own path of resilience. Let’s navigate life’s twists and turns—together.

Come Along
for the Journey.🎈

Subscribe to See Stu Go and get personal stories, health tips, and inspiration from my own path of resilience. Let’s navigate life’s twists and turns—together.

🎈My Birthday

🎈September 21st is more than my birthday—it’s World Myositis Day. Here’s why it matters to me.”

🎈Let’s work together to spread the word

And what is the word?